Streaming Happy Things with Joygage
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Welcome to fading memories. A podcast with advice wisdom and hope from caregivers who have lived the experience and survived. Tell the tale. Think of us as your caregiver. Best friend as you know. My mom suffered from. Alzheimer’s and cognitive impairment affected my grandmother and great grandmother. It seems to run in my family. But i’ve learned my brain. Health doesn’t have to follow the same fate as those who came before me. I am doing what. I can to improve the health of my brain including eating a better diet and exercising. However i learned recently that when it comes to nutrition most of us are still living with undernourished brains. And i know i need something to fill those nutritional gaps this led me to neuro reserve and their product relevant relevant is a nutritional supplement that restores the vital nutrients free healthy aging brain renovate includes seventeen of the most important nutrients that specifically target long-term brain health. These nutrients come from the mediterranean and mind diets was studies. Have discovered can reduce our risk of alzheimer’s by over fifty percent. You can use my code f. m. fifteen fifteen percent off of your order. This code is good for subscriptions which will apply to all future orders as well as individual orders go to neuro reserve dot com to purchase. The link is in the show notes and you can also find it on. My website narrower serves mission is to help our brain span match our lifespan. In twenty twenty streaming. Our entertainment became one of our top coping tools. Even our social lives essentially became streaming events when the pandemic restrictions started lifting many of us were eager to return to live concerts movies and seen loved ones in person for many parts of our society however streaming much of our lives is still an important coping tool family. Caregivers frequently struggled to find ways to engage an entertain their loved ones caregivers need ways to have their own personal time their own space to decompress rest and to take care of themselves what if they were a streaming service specifically designed for older adults. Does that sound like a wish. While your wish has come true craig. Fowler has created joy gauge a streaming service geared for older adults and his conversation with me is coming right up. I’m excited to bring to you today. A service that we’ve all desperately needed. In the past year i’m going be talking to craig fowler about the streaming service joy gauge since the combination of the word joy and engage him. Assuming so help me. Welcome craig to the show. Thanks so much craig for being here today. Thanks for having me jennifer. So i always not always but for a long time. Especially during this whole cova craziness that we’ve all lived through really felt that a streaming service was something that we needed for entertainment education and anything else related to older adults and caregiving. And obviously you had that idea because you made it happen. So do you wanna tell us your background or sure. Good place to start on how you how you came to. This is probably not something that people just generally think unless they’ve been caregivers I’ll i’ll start with the story of my of my mother. My mother wanda absolutely wonderful person. She was She ended up being diagnosed in the mid. Two thousand with early onset dementia likely a vascular. They weren’t really sure the time But she had had a number of symptoms and actually retired early early sixties. Before you we could tell my father night could tell that there were some things wrong. But i think like many people we sort of avoided the issue until she had a series of. Tia’s which released through for a loop and when we took her into the for that they Diagnosed her as having dementia and she lived at home with my father for around ten years after that and The very end of her life just really the last six months wing to memory care unit To a couple of different ones but in ten years that my father cared for her. I was living in an eight hour. Drive away so. I would fly in all the time we try to help him but i kept finding as she got further into dementia that the biggest daily struggle that he had in the she had was really just staying engaged in staying active so many of the things that my mother wanted us to do Before dementia in her early stages dementia just weren’t really accessible to her and she was very involved in church over the volunteering.
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Opportunities became intimidating to her. She used to love movies tv. That certain things that a number of things used to enjoy became confusing to her and she had a hard time keeping up with botts. She liked to do certain types of games early on that Word search games but over at some point in time those who came to challenging for her and frustrating for her so The the the thought of joy gauge was to was. Hey we know that there are actually quite a few things in the world available that will fit people of different cognitive abilities. People with different levels of short term memory but there are scattered around and not really usually very accessible so are thought with joy. Gauges what if we could curate and bring together All of those options and can use technology modern technology to customize those bring into individual People so that they actually have the ability using the streaming service to access a specific types of entertainment engaging activities actually fit them where they are without frustrating them but still provide enough challenge. Where they’re going to enjoy them. So that’s a quick background and what is the what type of entertainment is it. Just solely entertainment at this point searches screaming currently we have Entertainment and games. We also have a. We have sections for movies or television for audio books. And a number of audio programs we also have a section or the for memories that allows users are allows our our members to and their family members to download specific photographs Put them in a format. That’s really easily understandable for someone with dementia that includes pudding lots of details about the person in the photograph. The names the context So we actually have that also as a as a feature and we are currently right now adding a feature that is volunteer opportunities. We’ve had a lot of west or for activities that allow people with dementia to To help others and to really feel like they’re contributing. I know for example. My mother really helped You with someone who was a caregiver herself. She helped lots of people her mother her father and it really made her feel bad that she wasn’t able to volunteer and help. So that’s a new section that we’re adding which is definitely really beneficial. I think the longer they can feel useful the better. My mom got really super combative. At the end of her life like in the last year and one of the things that i struggled with and i think at this point i was over thinking it was she always wanted to be a helper and i kept coming up with ideas like while. If if the care staff would just handed the stack of napkins. They always had cloth napkins. just have her. Put them on the tables at dinnertime and if they ended up on the tables grade. And if they didn’t you know it’s not like you can’t have two stacks and atkins and they can just disperse them. And i was always really hesitant to bring that up with them. Because i did not want to add to their responsibilities and didn’t think that would be beneficial and so i think it would have been a lot smarter to have like had that conversation instead of just like over thinking it in my head which is what i did and then she fell and broke her leg and it didn’t matter at that point so she she’s always telling the other residents that were in wheelchairs or with walkers. Lean out her door. Go janina they help. Just let me know that it just always cracked me up. Because i’m like lady. You need help. You’re settled and so but that was her mindset. So i think that’s a really good idea. So the move. What type of the movies is. I know my mom started having. She had alzheimer’s for twenty years. So it’s hard to remember at what point things started when she couldn’t track tv shows and commercials just like i lose track. Sometimes because you’re watching tv at night and you’re getting sleeping. You’re like what happened before this. This hideous set of commercials which we have a youtube tv so we don’t generally have to watch commercials but the movies. I would think that would be a big challenge to to follow the ply. I have a hard time following the plot on some movies as it is so are they like specifically curated as i don’t wanna say because that doesn’t sound right but i think you know what i’m trying to get so we had a couple of things first. We’ve found movies from a number of mtv from a number of different areas. We’re we’re finding We’ve found it. Many people with timers different forms of dementia will add time phase back to a certain point in their life where they will be more comfortable.
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So we have a lot of different We have content from different specific areas that we can match the person but for movies what we have been creating. We’re actively creating more of these every week or the what we call a recall razors and we actually refer to miss cheat sheet so when you pull a movie up. Relax to be an eight and a half by eleven sheet. You can print out on your printer or just pull up on your screen on your computer or your ipad. That will give you a give that really cool summary that shows in part one. Here’s what happens in part two from thirty minutes to an hour. Here’s what happened each part and enlisted characters on the top with pictures so that anyone who is watching the movie can simply when they lose track of it and this features actually becoming as popular with caregivers it is for the people who with dementia been allows someone to constantly look down in reorient themselves on where they are within a within a movie. I can seriously us qassam movies. I’m like who is this character gail. I’m so confused i’m done. My husband seems to be able to track those a lot better. I just enjoy like story lines and sometimes it is. Sometimes you’ve got shows or movies where they bounce back and forth between like this was the past and this is the current. Sometimes i go in the future. It’s and there’s views visual clues as to what they’re doing but sometimes after a while it’s like what era are we again. I’m lost too complicated in the plot. Or i’m just not you’ll maybe i need to watch this in the middle of the day. When i’m more awake. I don’t know but yeah i can use a. I could use that cheat sheet. That sounds really. And and i think jennifer what you brought up is one of the things that we’re learning and we learned. We’re learning every week as we do. This process that as we’re cure aiding there are many formats. That just aren’t very good for people especially if they have a short term memory loss. I know i love to watch. This is us if you’ve watched that show on television but constantly goes between different timelines. Different different eras and it can be confusing to win of us. Someone with dementia. It can be extremely confusing. So we’re purposefully trying to limit the content. That is going to that we know. It’s going to be extremely hard to follow in disorienting. And unfortunately some of those kinds of like you just mentioned that. The hopping between timelines is becoming a common feature in many newer films. Something we have to be careful of when we’re curing you make sense now. I’m curious to why that’s becoming a thing. But like with this us. I mean they are. They are basically telling you two different stories at once. But it’s they overlap a little bit. There are times when it’s like. I missed the visual cues. And i’m thinking where am i you know. It’s like fortunately with a dvr type tv you can back up and go. Where are we again but you. It does get old after a while. That’s i like the chicago fire ones. That are like story from a. to b. then it’s over and everything is resolved in forty five minutes to the bowl but and one thing that we’re excited about the were able to were. We’re as a team. Working on is just getting feedback and watching what works what doesn’t work getting know in today’s technology you can get data about what individual people if. They’re watching something all the way through if they enjoyed or not. So there’s really not been any kind of academic research done in the past on what works well for people with dementia and short term memory loss. And so it’s there’s a lot of learning that has to be done and there’s a lot of anecdotal information as we talked with. We have our own experiences and talk with others but until now no one’s really tried to to summarize that in a in a data centric way that makes sense that sounds like a whole new college degree of study which it probably will if it isn’t already a thing will be a thing since we now that alzheimer’s and dementia is increasing exponentially which is terrible. But that isn’t actually interesting. Field of study. I went to san francisco state and they had a big theater department. So i could anti-big like tech department. Not the right word. But i could see how those two departments would overlap. And that’s really interesting to me or the academy of art. Yeah you know. it’s. It’s interesting that i’m seeing that for a long time. It seems to the world of academia looked at alzheimer’s disease and dementia as problems to solve versus A something that you need to live within the you’re going to live with with that. We should do research on how people can live better. And that is changing. There are some. there’s definitely a a change. That’s happened in the last Last few years of that people are starting to think more broadly about living well with dementia.
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And i’m a Dementia action lines. And they’re wonderful organization. That’s really focused on people having a vibrant life after their diagnosis and again. There’s just not been thinking of academia for many many years into it’s a new. I’m currently reading a book called running all over the world. And it’s a gentleman and his life partner. She has early onset alzheimer’s and they’re like marathon runners in so they retired. Will she had to retire but he retired somewhat early and they travel all over the globe and they run marathons all over the globe and my first question to him is going to be. How does that not make confusion worse or is it just that every day is so different like and vibrant might not be quite the right word but it’s got some you know it’s different so there’s like new inputs like new brain stimulation. I’m really interested in talking to him. It’s he’s he’s an upcoming episode. And i just find it really interesting. That not being in the same place for very many days doesn’t just make her whole her whole disease Process worse. And i’m wondering if he’s onto something not about the running marathons all over the world not interested in that but just the vibrancy of different like i don’t like i don’t i like leftovers. Reread books generally re watch movies or tv shows because already know what the end is so. That’s not very entertaining. So i’m wondering if the word that i’m looking for his bouncing around in my head and not coming out. But just the the uniqueness of every day being stimulation that her brain is is glancing onto. And it’s helping her maintain where she’s at that just goes against the grain and some you know talking about living better with dementia. That’s what brought that thought to mind as that. I think we’re gonna learn awad in the next few years which is going to be kind of interesting. Yeah and i’ve learned anything since founding this company a little over a year ago. I’ve had a chance to meet so many amazing people and including some amazing people with dementia. That really shattered. Sort of my My notion of what people who were living with dementia are what they do. And i found a number of people who they travel. They do very different things all the time and i don’t i i’m not sure if maybe it’s that something that helps him if there is just it’s individual people like some of us who’ve traveled for most of our life if there’s a comfort in traveling and doing different activities every day that some people might like and some people won’t but I definitely have seen been amazed to see so many people who’ve had dementia. I you know considerable period of time. Who are quite mobile and similarly doing very well with that. Now it’s gonna be interesting study. My mom was very ambulatory. She spoken clear specific. Words that strung together like a sentence. There was no context that you could grab onto. It was almost like she plucked a sentence out of some other conversation. And you’re like wait. I gotta catch up but to somebody. That didn’t know her. They would usually look at being. Go like what was she saying. Don’t know so. I’m thinking they’re gonna learn a lot in the next few years which i think now that we’re talking about it’s going to be super fascinating and i like variety but also like home although really sick of it after this last year some kind of wondering like i don’t think i would do well stuck in one place with the same routine over and over. I think that would accelerate a progression of a cognitive disease which i won’t get but Just just kind of like spitballs off the top of my head while we’re having this conversation. I don’t know that the constant travel would be good. But i don’t know that’s to be we’ll see where the husband and i are talking about going on a three week road trip. We’ll see how that how that rolls out of how i feel when we get home. And maybe i’ll have some anecdotal evidences to whether or not i need how much home versus variety. I need one for a lot of us after the last year. who’ve traveled for a lot of our lives just about almost twenty five years on the road. All the time for business. And i would have loved If you told me i could stay at home for an entire year i wanted. It would be amazing but now after a year being at home i think very differently You my mother. She was interesting when you mentioned travel in motion up. She my father especially she progressed further. Dementia he she wanted to go on. Drives rides and my dad didn’t live on the highway so he would drive down country roads in east tennessee where they were living from and at some point he was doing this hours a day and she would just didn’t have to be the same road it could be different.
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If you’re riding with her she would. Of course she would recognize every dog. She saw every person at some point so there was some level of comfort. Even though it was different to her that she loved to be moving and love to be going somewhere in that really soothe. Her drove my dad crazy because he was older and spending. I think about twenty thousand miles on the car the last year that before she went into memory care not on the highway just driving little country roads but i also saw from my mom when she moved to assisted living when she got out of the home into a different area. It didn’t go well at all. She was really stabilized in. So i was kind of heartbreaking to me to see how tough it was for her to leave a home that she had been in for. I guess at the time forty is for order year she’d been in the same house and to To go somewhere up to actually live somewhere else was extremely difficult for her. You said she ended up in two different ones i. Why did that happen because that sounds like a super nightmare. Oh it wasn’t it was. It was an absolute nightmare. The first one we could end she got kicked out of after about a week because she was Had behavior issues as they described them that classic term. I hate to use And they sent her to the hospital to get the proper drugs which of course don’t exist and after few weeks than they said They won’t take her back because they tried to. After a day said no she can’t come back yes to go to a place. It’s got a specializes in difficult case people and which there were i think all of you know three in the entire area of a million and a half people or something so we ended up taking her about an hour and a half away to the d. pills by the north carolina border to a to a facility that would actually accept her so it was really tough ticket 5-foot-tall hundred and ten pound person who you could never harm to fly in probably couldn’t punch through a piece of styrofoam but because she was violent She had to be placed in a special facility. That unfortunately for someone like my father was a long long. Drive away wasn’t easy for him to drive an hour hour and fifteen minutes each way at his age just to to see her. It was really hard then is probably sick of being in the car. After driving her yeah. He went from driving her driving himself Now that’s not good. It’s interesting that they didn’t like my mom lived. I mean she was two months. Shy of three months is somewhere between two and three months. Shy of forty seven years in the same home which is where she raised my not my daughter my sister and i well my daughter a little bit too and you know everything happened there in. I was just a the reason we chose memory care was because i had just turned fifty. My daughter had just moved out. My sister has school age children. It was like i am. We also assume that she could easily live ten or fifteen years and there was no. I’m like i’m not giving up the next decade of my life. If i was seventy that might be a different just choice but at fifty now on worked really hard. Raise the kid you know. It’s it’s time to time to do the stuff that i wanna do. And keep working my business to that. And i also knew that she would benefit from the activities and stuff which she did. And when i didn’t suspect as she really benefited from the friendships. That was that was interesting but it took her about six weeks to acclimate. She wasn’t violent at the beginning. She just you’d show up and she’d like falling your arms sobbing like like a hostage being rescued. It was horrible. I will never forget the day of retold the story a little bit. I showed up for my my regular visit and she was following behind another resident who is bound and determined. She needed ends that phone. Oh those old ladies in the phone for a while or just crazy and my mom following her and she saw me and she said oh. Oh come with me. I have to help my friend. And when she said that word friend the look on my face probably would have been the same as if they had said. You’ve just won the jumble lotto because it was just like it was happiness and relief and gratefulness. I was like thank god. You know it’s like the sobbing and crying and wailing her going to be over in it and they were and i was shocked because after that she did acknowledge that she’d ever had this other house. I guess it went into the memory hole and never came back out. It was so that was kind of a benefit but you know they they knew it would take a while and the executive director told me a month and i’m like oh yeah no. It’ll be longer than that. So he was closer to right than i was so surprised that this community wasn’t a little bit more flexible but also why the community.
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My mom was in kind of a really ugly situation a couple of years ago. The let’s see. I knew all the players. Basically the a person who’s spouse was in my support group and the father of client of my husband’s had an interaction. The person who’s loved one was in support group. That person was out of town trying to be real generic year and the person that memory care got very panicky that they could not get a hold of their spouse and shoved my husband’s clients father. Who fell broke his hip and we all know what happens. Only kipps so fortunately it was resolved. His wife was in the is still in the assisted living part of community and they don’t have to pay for her anymore. Is i mean it wasn’t like it was a voidable situation. But he’d been a problem in other community. That was down the hill from my house and part of it was. He was very tall. He used to be an ultra marathoner which is very specific detail. It’s like i try to story of as generic as possible be is a very active person and now he’s locked in this small area and he that guy would not i don’t know if he’s even still alive but he would not have survive well with the covid lockdowns at all and so it’s it kind of goes back to the living well with dementia. Because in the beginning she would have like a running group would run with him but then it got where they couldn’t just run with him and kind of keep an eye on him. It was more of a a supervisory protection mode that they had to be in and they were trying to run for the reason people run. I don’t know. I always say bears chasing me. I’m lunch. i like the cycle. It’s better on your knees but you know if there was some way any of the communities in our area could have engaged him physically. That probably would have helped they freak out that happened. That caused this unfortunate situation it. It’s tough. I mean when i when i look back to my mom situation in the end. What is the things that was inspired me to create joy gauge. Was that when she started getting really bored she started you could see that boredom and led to typically lot of acting out in getting angry and which i understand you when my kids were little i think most i can remember when our kids were. There was nothing like board kid on an airplane to start doing really bad stuff so if an adult suddenly can enjoy television other things up there they used to enjoy and they’re enclosed in a small area. It’s natural it’s it’s not something to do with dementia. Any of us get bored and start acting out in with dementia Depending on the type of dimension. The person that acting out could be more severe. And i think what i see with the situation that my father and i went to. I’ve heard this from number of other people that sometimes when it gets to be too much for the caregiver at home to deal with The same thing that led to him not being able to keep care of. My mom was the same thing that the new place dealing with. We thought they would be more capable of dealing with it. Bagasse their league. Your legal side and others said no but unfortunately that left us in a situation that i am. I was told my mother was a special situation. It seems that everyone. I talked with seems to have a very similar story. Did their their loved. One was also a special situation so on my mom started scratching with. She did not think she needed help. Did not want help a very upset. When help was essentially forced on her. Which i mean. You didn’t really have a choice. It’s like you need to shower willing to do this twice week. You’ve needed to use the toilet and obviously you’re having issues with your clothing. I will never forget one week. As we always went out and watched we went to the park and watched kids so i was very blessed that she decided to opt out of continuing on with life right at the beginning of the pandemic because for the most part in the last fourteen months not been a lot of kids in parks. I don’t know what would have done. Well i don’t. I don’t even know how much they would let me in. But we do what we normally did. That brought her joy and to me a little bit of quality of life. I was able to give her but we as we were leaving. She’d always tell me. I call a bathroom. Thankfully a public restroom right as we were leaving one in. You always open the door and okay. There’s that and she one day and said why am i here. You said you wanted to use the bathroom before we went in the car. Oh yeah yeah yeah. and then. She’s literally sat on the toilet sideways.
00:30:03 – 00:35:07
Which not comfortable all. I tried it when i was by myself. I was like this is really bad and just trying to adjust her because of course she sat down and she immediately complained and just a adjusting her. I barely touched her a mostly. I had my hands up so she could see them. But i kind of use my knee like shifter badio versus you. Sit in properly on the toilet. It upset her. And then i just backed off and let her do what she needed to do. Literally a week later. I had to help her with her clothes. And i thought oh this is not going to be good. Because she doesn’t like help. And i’m like pulling her pants down the whole time i was like. Oh she’s going to smack me or you know. Thankfully she didn’t but yes she clogged drew blood using baresi because they would all say oh shoes so sweet what she first moved in. I’m like well. Yeah didn’t grow up with her but you know it was. It was hard and that was one of the reasons. I was trying to find ways to give her some purpose so that maybe she wouldn’t have wouldn’t lash out like that as much but i personally think we need to move away from an isolated. Not quite the right word but individually individual communities to avila g type situation that’s with The rest of the community like my mom’s assisted living facility was across the street from a middle school. So if it had been like there had been like four lanes of traffic between her and the school. You know if this is like oh. Let’s just blow up an entire town rebuild it so we can do by my grandiose idea but if the kids had to like walk through a part of the community to get to and from school then they can interact with the you know the adoptive grandparents or something obviously and have to keep it secure so they adopted grandparents didn’t get lost but you know there’s other countries that do stuff similar not quite as incorporated into the community. But i just think we need to and this is probably like you were talking about living better with dementia is if we can incorporate their lives in with the community. I think that would help a lot. But of course requires a humongous infrastructure genes. That isn’t easy or cheap. Yeah but then. That’s it that’s a that’s a great point and you’re one of the things we’re trying to do with our volunteering functionality. We’re giving opportunities for people with dementia to ride encouraging letters to kids to to soldiers overseas even selection that will allow you to write letters to prisoners and to write letters to people who have dementia who were in the much further longs because we’ve realized that you know that people who are in earlier stage dementia can actually be very helpful to people in later stages so we’re realizing their lot of time and opportunity people have during their day and if they can even take twenty minutes a day and do something that others. I helping others the second just the feeling that someone gets especially they were winning naturally a caregiving person. The feeling they get from doing something positive for others can be really be a big a big mood. And i think that’s a and i love what you said about kids because one of the things. We’re getting as we start with. George gauges we we get more and more people using our product is feedback of what people want to see like. I would have never thought. There is a reasonable amount of people with dementia. Who want to see tractors and farming but there are a lot of people that grew up and spent their lives on farms and they actually would like to see something like just something that might look boring of a tractor going around That’s something they could actually be very soothing to someone and you mentioned kids want just watching kids in school watching kids walking It having as people get further dementia being isolated from kids is actually really bad and anything can allow people to into interact with kids. Even just to see kids can be really beneficial. I was always surprised collie about the middle. My mom was in memory care for three years so about in the middle of her stay there. There was a family visiting had a two year old. And all know how to your old and it was a little boy and they would go out the courtyard because it was a lovely place to sit most of the year because it was basically had big overhang so you were in the shade and but you got. The benefits of the sunshine was lovely. Like every everybody’s courtyard should be designed this way and of course he’d go out there and he would chase my mom’s obesity fat poodle which i never understood how that dog ran. She literally was double her body weight. And i i was always surprised when she would take off and run was like whoa fats can run okay. But you know he chaser. He’d shriek and i know that used to drive my mother bananas because it makes me crazy. It’s like my daughter was not a streaker so when little kids straight it’s like oh pam glad mine wasn’t like that and she just loved it has like you would have hated that ten years ago.
00:35:07 – 00:40:05
You know what you were not. Your mind was better. And she was so good with him and he was okay with her two in you know when they get to the later stages they start looking a little bit you know. I don’t wanna say scary. But that is kind of like. If you’re looking at it through a child’s eyes and today i have a episode out on. Its call my grandma has dementia. It’s a children’s book or obviously to help them understand what grandmas might be going through. And i personally think it’s an excellent idea to help integrate kids in seniors. Because there’s so many millennials now that are taking care of parents and grandparents you know if they if you’re taking care of your grandparents you might have not been exposed older adults much because you know your family is not that old and boom. You’re taking care of a grandmother or apparent with early onset alzheimer’s and it’s just it’s kinda traumatizing. So the more aware is just. It’s like removing the stigma becoming seriously like learning how to adapt. We all need to learn how to live better with alzheimer’s even if we’re taking care of somebody with alzheimer’s i hope that makes sense absolutely and and we need to change as a society and not ignore in high away. I think that’s part of his people. Don’t want to deal with dementia. Win the things i realized when i started a tech startup i’ve worked in tech starts years. I started focusing on dementia. There are there are a lot of people with dementia and a lot of money spent on care for dementia but not many people are starting companies are thinking about doing things to help in. I think one of the reasons is young. People just don’t want to think about it. It’s not something that That that you but then once people start working with it. They’re the people are working on my team. Just they’re so passionate because they see the need to people. But i you reminded me of the story of my mother when When i would go with michelle and i would take the kids to To see my mom we’d always fly down to drive down. We’ve found one thing that always worked well with my mom in everyone was just drive thru animal safari probably not most humane thing for animals. It was very much a good old redneck style. When in the middle of nowhere in the mountains that you’d say your ten dollars drive your car down dessert roads and have a bunch of large animals. Coming try to eat food from your car and my mom always liked. It was always a great way to integrate. You know for her. It indicates to spend time then as she started getting the last time we took her was when she was getting toward Later stages in suddenly this time. She was freaked out. She was scared. She was cursing every other words and my kids are sitting in the minivan with a low going but anyway she’s like freaking out wreck okay. Looks like we’re passed this point but one of the things that i realized with my kids is how you observing her over time as she went through midday and they just they understood. It’s almost that they had this natural understanding that it wasn’t really who she was. There was coming out that they was. She was struggling within. They were just great all the way through. And so i was just really impressed with how Even though i probably the time didn’t explain things as well as i could have a dimly didn’t have the book on it They just sort of loved their grandmother and understood that that one trip she said moore curse words in that one trip than she had said in the first like or years of my life. Thirty five years of my life whatever. It was actually pretty funny. It’s funny now Dislike wanting to serve out the van door at the point. The point is my mom. Didn’t while the one forgot what it was. I said i said something. And she just looks at me she goes. Oh that’s bullshit it is just like okay fine. And she wasn’t a swear or either it was just like okay she was. It was funny. But i find that if they’re what’s the right word if their word is not wanting to pop out but if they’re the kids are around somebody like your mom. My mom like early. Yes and they and they they keep up with the visits and everything. It’s just it’s almost normal. I mean it’s not obviously not a normal thing but it’s not scary. It’s not a it’s not upsetting if you explain why you know okay. Well grandma’s kind of forgotten her relationship test because like my mom always thought i was her best friend and it was like okay that works i never. I suspected that she had forgotten me over time. I lost a lot of weight. So i knew i didn’t look. I didn’t look like the person she remembered. So it was pretty easy when she stopped remembering who i was unlike. I know that’s a big struggle for a lot of people but when you can explain to him it’s just you know. Her mind is made up and she knows she knows we’re special but she doesn’t remember that you’re the grandkid or the now you’re nine or whatever they just roll with it a lot better.
00:40:05 – 00:45:05
I think we’d be better off as a society if we allow kids and older adults to interact. So that one we have this intergenerational sharing memories and experiences but we also you know there’s a lot of benefit from each other. We need to do that. And the thing. That i jennifer. I always found my kids struggle with more when they were younger was finding being just dropping grandma’s house where the tv was on playing. Andy griffiths wasn’t really they would be bored to tears and winnings in once ipad or phone or whatever it gets early on there was before there was probably night beverly would want something to play with. They just weren’t It was sort of like renting it to speed. So i do think also finding the right ways to interact and being a little more thoughtful on. Hey what are things you can do together. Is there the movie that everyone can watch. Is there an event like a driving park or something. I found playgrounds. Were you mentioned playgrounds. Playgrounds regret when the kids were young enough to go. My mother could just watch anybody on the playground. Whether it was gina was her. Grandkids are not so part of. I think integrating people different generations. Also take some planning around activities. Everyone really enjoys. I can think of like especially when they’re younger like early like preschool kindergarten. That that young could do simple puzzles together. My mom and my daughter baked now. Let’s see my My daughter’s twenty nine try remember. My mom was when my daughter was born. We hit domestic my head like this is my second zoom recording. Today’s like you could tell. Parts of my brain does want to like take a break but it would have been nice if my daughter could have done things like like flip the script. My mom teaching her baking my daughter baking in with her grandmother being an assistant because that would have been fine in the earlier to mid stages you know and my mom was very creative and craft. She’s so she painted. She did woodworking. So if an i tried really hard to find those activities like a simplified version of those activities. I think we started way too late and so engagement is really important for out titus. She stopped going into woodworking classes. And i remember. There was an excuse. And i don’t remember exactly what it was but i knew at the time i’m like this is bs. I think you’re having a hard time following along and obviously i was kind of a little bit relieved that she stopped using big power tools. Because it’s like you know it doesn’t take too much of a slip of the attention and then you know you might have nine fingers ten and if your brain isn’t quite you know working the way it’s supposed to makes those kind of accidents even more easier to happen. Why didn’t even sound like a grammatically correct set. But i think it was. She was in denial. My dad let her be in denial and it made it really easy to just stop doing things trying to find ways of like what you’re dealing is find different ways to do something similar. Yes and we’re in a world that is designed for people with good attention spans and excellent short term memory. If you look at most activities most classes most things you do today you you. It’s designed for that. I joke before that i use. I’ve used hulu for years. But if you go to the hulu hulu live. I think they have a extraordinarily complex user interface. If you actually tried to go and find the show it’s it’s maddening for me. I couldn’t imagine someone like my mom at the time. Ever being able to figure out how to go through that. It’s not so. I think often would i see today. We have technologies in some ways like zoom and People doing video on facebook messenger. They’re really simple. And easy for people at the same time where some companies are going the other way and saying hey we want to add new features and and they’re designing for twenty three year old with great short term memory and it can be intimidating for people like your mother my mother in for many people with dementia today and the standard response. I usually see his. Let’s just were embarrassed. We can’t keep up. Let’s just avoid the activity that leads to boredom and in the lack of engagement. Only tech companies need to realize that the globe but america in particular grain house. Like we’re getting older. There’s lasts you know. There’s the boomer generation and then you and i are genetics and then there’s more millennials than there are of us. I don’t know what the gen z. How many. I think there’s probably less of them than millennials. But it’s like there’s less young people than there are old people so hello let’s focus on the market.
00:45:05 – 00:50:01
That’s biggest right. So that’s what i learned in business school. Yeah absolutely and even if someone you know the our generation and even a lot of boomers are getting very tech savvy. But there’s a difference between being tech savvy and being in having being completely free of any kind of cognitive impairment and as we age certain types of cognitive impairment or just become likely by the time of ninety dollars a very solid chance. They have some type of cognitive impairment. And that is young again. Not how technology companies are designing the world. So i think we I’ve been i. I often laugh at some of the products. I’ve seen for older people that seem to be just so simplistic that they’re almost sunny. But so i don’t think you have to go to the extreme of you know having having screen with two buttons on it But i do believe we have to be much more thoughtful about user interfaces. That’s something we’re trying to do with. Julie gauges to experiment and find ways to make it You know to to to give people varieties of that. They can find what they want. But not make it like a hulu or netflix. Or something where you have a billion choices that you have to navigate that at some point we’ll just straight someone without with with with a shoot struggled with short term memory i find with the streaming. I think was at discovery plus my husband just recently signed up for so that we can watch the tour de france and we have priority is obviously and it’s sometimes it’s like really didn’t it’s like can you just show the shows that i you know like we like Hometown can you just show me the episodes. We haven’t seen like the way this one because we’ve seen all the past ones and sometimes i find it. You can spend twenty or thirty minutes scrolling through stuff to look find something to watch then by that. It’s like i’m so bored. I’m gonna go read a book. Yeah and in drives me crazy when services. Start playing audio previews the second that you come on. That just drives me nuts. Like i don’t wanna hear some services. They they want to market the their own movies and things that they created they want their. There’s often a reason you’re seeing certain things at the top of your list on spotify or you know or netflix or others in in that mayor matt may not be only your something. That’s great for you. It can be that it’s something that’s also profitable for the company and again with joy gates at something we wanted to be kinda To try to have a service that understands the person and uses some pretty sophisticated algorithms in machine learning to understand the person but it. It’s gonna agnostic to what it. If it’s something’s going to work well for the person we want that to be the top thing on the list right. We don’t care about where it’s coming from. It’s anything to do with us or someone else. We want to match people to things that will make them happy makes sense. I love messing with algorithms. Like my podcast. Subscription list is completely schizophrenic. Have like news politics. True crime and crafting podcast of all things. I listen to those while. I’m doing my little hoppy and so it has absolutely no clue. What is i think not really. I mean it. It’s probably figuring it out by now. But then i’ll throw in something different. Just i dunno. I like righty and so throws off the algorithm. So i laugh. As i understand it just enough that i realized that it’s challenging and we’ve been watching My particular hobby as weekly demos on youtube. They’ll youtube lives and now my husband’s getting push notifications about these. This similar service or similar products cities like this is crazy. It’s like your hobby. But he likes to watch to just like. I just seems to be really strange. This houses the same way where someone searching suddenly. I’m getting eventually things at teen girls would like a phone. My phone in like Where did this come from. I’ve never searched in like. Oh we’re on the same. Oh we’re on the same exact server and it’s it’s a promise of algorithms is there. It’s just them well. We could talk through a whole show on just how poorly they’re often executed in and weird things it. We see when they are executed for easier execute executed poorly than dig deeper. Like sounds like you’re doing. So where can people find this wonderful service. That’s better than net flicks. Well just if you just go to. Www dot joy gauge dot com. That’s j. o. Y. g. g. That’s place there’s an ability to try out for free you can just go straight on and start using it. We’ve designed it adjusted recently. Where now it will work on any device any computer any phone you don’t need to.
00:50:01 – 00:55:03
You can download out but you don’t necessarily even need to download nap. You can just start using it. Our goal was to make this accessible to almost everybody so we wanted to make it. Not something that’s you. Pay a huge amount for for just a simple subscription service. That’s low cost that can be accessed by anybody so yet good enough also with joy gauge go to our facebook page. There’s more information but easiest ways to go straight to our website awesome. Well that’s going to be hot linked in the show notes and then a quick question. Does it work on internet connected. Tv’s yet or is that coming are you. Can you can use it from the browser. Anything that’s got to browser you can use it to as long as you’re My internet connected. Tv has a browser We haven’t you also can cast it from your phone or device so it cast on the tv. So mostly i knew my smart. Tv’s i can either have a chromecast or you can cast into. It should work that way. We not to be too nerdy but we’ve decided we aren’t really building like l. g. and samsung and sony apted waiver. Only because we’re so small it just it it’s it would be instead of going that route we just said hey. Let’s make sure that we have versions at work work on any browser that way we can kind of hit everybody and make sure that hopefully ninety five percent of people can get it to work cast to their tv versus download to their tv. I know we haven’t android tv in a house full of apple products and we can. We can do airplay to our tv. I don’t know if it has a browser. I’ll have to look haven’t i haven’t had that. Need husband would know. And he came in here to say hello and realized that i was recording so anybody watching the video. That’s what that’s what that weird interaction. A few minutes ago was as he realize. We’re using actually google youtube. Api for most of the videos and stuff so it that will cast almost any tv. Farso chances are if it’s a smart. Tv it will probably be able to cast firms and if it doesn’t work this let us know we. We’re always wanting to find a corner cases. We didn’t plan for which those. I’m sure pop up. Well this is fantastic. Do you have a. what’s what’s your your only about a little over a year old right. So what’s what’s on the horizon for where you’re going like her so the short terms. I mentioned adding volunteer section. And then what we’ve had a what we We are creating more as we get more people using our products. Were calling everyone a member. We’re going to create more also social communities. That’s what we’re we’ve got a lot of demand for this year as we get more people with dementia as being linked together so that they can interact with each other. Perhaps video sessions others. Were realizing that once you get a number of people who are all like minded who are in similar situations that It Allows us to what you’ll see within the next twelve months is are a lot more opportunities for people to be social but social in a safe area with people who understand all of whom under either have dementia understand dementia very well. So they’re not going to be judged from for for acting typing or saying things in a certain way. Oh that sounds fantastic. Well i am excited about this. It’s definitely something that we’ve needed. I’m sure people wish that you’d find this a little bit sooner after last year. That probably do well. You know better late than never. And i look forward to seeing all of the improvements but all the additions the exciting things that you will be doing. A lot of the listeners will tune in and check it out. ’cause i’m definitely sure it will be a benefit to all of the family caregivers. Who have their loved one at home. Thank you so much jennifer in so much for me. You’re welcome. have you clicked lincoln. The show notes to start your fourteen day. Free trial not yet. Well let give you one more reason to do so. Science all of the excellent content that they have provided joy gauge is a sponsor of this show and by supporting our sponsors. You are supporting fading memories. Also starting this month. July twenty twenty. I am conducting an audience survey. Because i would really like to know what you guys like what you don’t like and what you might want to see that i haven’t thought of yet and i know you got a lot of things to do so to sweeten the pot. I have a fantastic gift basket. That i will be giving away to one lucky recipient who fills out the survey some of the items included are two bottles of neuro reserve which is over one hundred dollars in value a fidget or cube. Hasn’t come yet. So i can’t tell you which one it is. A beautiful brand new children’s books.
00:55:03 – 00:56:04
Some of the handmade greeting cards. That i make and a little something just from my hometown. I’m still looking for more items to add to the basket. I’m asking past guests and future guests. If they haven’t item would like to donate so stay tuned. Watch the social media. Make sure you’re signed up for the newsletter because it’s definitely going to be talked about there and when the survey comes out you can find it in the show notes or in your email and coming up next week. I have an award winning author a top two hundred and fifty tech podcast host. He is going to be talking to us about his mom’s journey and how caregivers can tell their story for publication. There’s a lot of them that have done it already and some of us like to know how to do it for ourselves. So thanks once again. And i’ll be in your ears again next tuesday.