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A Supportive Podcast for those Dealing with a loved one with Memory Loss

The Transformative Power of Neurofeedback Therapy

The Transformative Power of Neurofeedback Therapy

00:00:02 – 00:05:00

Welcome to fading memories, a podcast with advice, wisdom and hope from caregivers who have lived the experience and survived to tell the tale. Think of us as your caregiver, best friend. When I learned that despite eating as healthy as possible, we can still have undernourished brains, I was frustrated. I also live in a farming community, so I’m aware that our food isn’t grown as well as we need. Learning about neuro reserves releve and how its formulated to fix this problem convinced me to give them a try. Now I know many of you are skeptical as was I. However, I know it’s working because of one simple change. My sweet tooth is gone. I didn’t expect that and it’s not something other users have commented on, but here’s some truth. My brain always wanted something sweet. Now fruit usually did the trick, but not always. One bad night’s sleep would fire up my sugar craving so much, they were almost impossible to ignore. You ever have your brain screaming for a donut? Well, for me, those days are gone. It’s been about 6 months since I started taking the supplement and I have no regrets. I believe in my results so much that I’m passing on my 15% discount to you. Try it for two or three months and see if you have a miraculous sweet tooth cure, or maybe just better focus and clarity. It’s definitely worth a try. Their link is in the show notes. Lulo a small, understands the desperation of loving someone with a life limiting, cognitive disease. Her brother Milo was diagnosed with autism at two a half. Today he is training to become a professional pastry chef. Everything began to change when the family met doctor Lynette Louise, her integrative approach using neurofeedback and play was the catalyst that helped Milo to thrive and grow. Lula even used the therapy herself to overcome poor concentration and focus. Greatly impressed with her own improvements, she was inspired to become a practitioner herself. Her path from quiet to clinician illustrates the different approaches to health using neurofeedback and highlights the gap between the research and clinical worlds. Neurofeedback like dynamic learning asks your brain to do things in a new way. This treatment can help stabilize our loved ones, it can help us prevent the onset of the disease and can really help all of us age well. Welcome back listeners to day we have something totally different and with almost 200 podcast episodes in the works. That’s pretty unique. So with me today is Lynette and Lulu and we are going to be talking about Lulu’s book from client to clinician and specifically on how they use neurofeedback for people with Alzheimer’s. So thank you for joining me ladies. Thank you for having me. Thank you appreciate it. You’re welcome. So let’s have Lulu introduce herself since she’s the author, and then we’ll have a net tell us about herself. There we go. I can do it. So hi, I’m the door. I am a neuro therapist. And Louise is my mentor, and she’s the one who has trained me in neurofeedback. My book from clients a clinician is actually the story of me going from client of neurofeedback to a clinician of neurofeedback. And in the book, I also tell a story of my brother who has autism and treated with neurofeedback as well as play therapy and that’s a whole story of the book and what neurofeedback is and there’s interviews with doctor net Luis. So maybe just a little brief explanation of what neurofeedback is. Neurofeedback is a therapy, biofeedback for the brain, where we are improving brain functioning by training individuals how to control their own brainwave activity. And we used that through sensors that we place on the scalp. We measure the EEG, and then we use that to give feedback to the individual through positive reinforcements, reinforcement, sorry. And they’re just simple rewards, beeps. So auditory rewards and visual rewards. And it helps with many brain challenges, including Alzheimer’s. So maybe Lynette now you can go ahead and you want me to grab the ball. All right, I’ll pick up here. I said just before we started I said, we’ll have to say here. If you were on the court, right? Fine. Okay, mine. All right, I’m doctor lanette Louise.

00:05:00 – 00:10:01

I have a huge backstory, so my backstory is condensing it that I adopted multiple challenge children, a lot of them had autism fetal alcohol syndrome and a variety of other things. As I tried to figure out how to help them, I had to actually solve problems that weren’t solvable. And learn things that hadn’t been learned yet and combined therapies and create. And so that’s how we ended up with a sort of a cocktail approach. Played their family dynamics counseling, all sort of things. And I traveled the world. It didn’t stay just with any particular diagonal diagnosis. It ended up being whole family. So the family all have someone with Parkinson, someone with Alzheimer’s, someone with a trauma, someone with autism, someone with ADHD. And it just grew, fortunately, neurofeedback is a therapy for the brain. And all of these brain disorders. It’s not like a targeted medication where you have to be correctly aligned with the diagnosis. Rather, it’s a therapy where you can target for the diagnosis. And you can apply it to almost any challenge. So I always say, a brain is a brain as a brain is a brain. And rather than worry about G but does it work for this disorder? Well, it’s about optimizing brain function. So if you’re optimizing brain function, it really doesn’t matter what your challenge is, you’re going to improve. Are we going to cure your Alzheimer’s or your autism? No. But you’re going to improve in a way that depending on the disorder. You’re going to improve in a way that changes your quality of life and possibly makes it look as if you’ve been healed. So that’s kind of my backstory, my reason for being and how we ended up, I ended up working with Lil’s family and little eye and she became like the star pupil and the most amazing protege. And we worked a lot since those early days in Lebanon and France. And yeah, I know it’s really grown. And she’s really grown. And I’m ready to take a back seat. We’re Alzheimer’s is so that’s the background and that’s not a feedback. I’ll give it a more sort of a focus to Alzheimer’s. And you had said, at the beginning, Jen, do you want Jen or Jennifer? Neither one’s fine. Most people call me Jen. Okay, Jen. So you had said they usually you like to have sort of a caregiver story or something. Today we have something totally different sort of deal with almost two podcasts with your brain, but in the works. My name got me today. And we are going to under which book from more famous. And specifically, I’m very often someone has dementia Alzheimer’s, so thank you for joining us. Thank you for having me. Thank you. Welcome. Yourselves. And then we’ll talk about that. Tell us about herself. There we go. I can do it. Go for it. So hi, I’m the door. I am a neurotherapy. And Louise is my mentor, and she’s the one who has trained me in neurofeedback. My book from clients to clinician is actually the story of me going from client of neurofeedback to a clinician of neurofeedback. And in the book, I also tell the story of my brother who has autism and treated with nerve feedback as well as play therapy and that’s a whole story of the book and what neurofeedback is and there’s interviews with doctor lanette Louise. So maybe just a little brief explanation of what neurofeedback is. Neurofeedback is a therapy, biofeedback for the brain, where we are improving very difficult by training individuals how to control their own brainwave activity. And we used that through sensors that we place on the scalp. We measure the EEG and then we use that to give feedback to the individual through positive reinforcements, reinforcement, sorry. And they’re just simple rewards, beeps. So auditory rewards and visual rewards. And it helps with many brain challenges, including Alzheimer’s.

00:10:02 – 00:15:00

So maybe Lynette now you can go ahead and you want me to grab the ball. All right, I’ll pick up here. I said just before we started, I said, we’ll have to say here. Like if you were on the court, right? Fine. Okay, mine. All right, I’m doctor lanette Louise. I have a huge backstory, so my backstory is condensing it that I adopted multiple challenge children, a lot of them. Too. Alcohol syndrome and a variety of other things. As I tried to figure out how to help them. Yeah, I’ve told most of my has to actually solve the things that hadn’t been launched. And so that’s how we did. That was not an option last year. And thankfully, she fell broke her leg, which was near the end. Because up until then finally, my mom always said everything. That was the race with any particular diagonal diagnosis. It ended up being whole family. So in a family, you’ll have someone with Parkinson, someone with Alzheimer’s, someone with a trauma, someone with autism, someone with ADHD. And it just grew fortunately, neurofeedback is a therapy for the brain and all of these brain disorders. It’s not like a targeted medication where you have to be correctly aligned with the diagnosis. Rather, it’s a therapy where you can target for the diagnosis. And you can apply it to almost any challenge. So I always say our brain is a brain as a brain is a brain. And rather than worry about. But does it work for this disorder? Well, it’s about optimizing brain function. So if you’re optimizing brain function, it really doesn’t matter what your challenge is, you’re going to improve. Well, I have a question. But you’re going to see that. Okay, because that’s interesting. Possibly makes it. I have been telling your story. It’s how he ended up working towards. People and the most amazing. Way back to it. I’m not sure. It makes me question. Obviously, my thought is we should do this kind of treatment earlier. Maybe slow down. So that’s the ground. And that’s more sort of a focus to Alzheimer’s. And you had said, at the beginning, Jen, do you want Jen or Jennifer? Neither one’s fine. Most people call me Jen. Okay, Jen. So you outside they usually you like to have sort of a caregiver story or a close in story. So I’ll start with my mom. Since, you know, it’s always good to sort of feel what people are talking about, not just here with your brain, but here with your heart. So my mom got dementia. Now, dementia is an umbrella, which is one of the reasons why people Alzheimer’s this more famous memories in more people and very often when someone has dementia, they have all signs. Or they have a different kind of until you guys reached out. I didn’t even know that this was an option. And also itself. Obviously, it’s something that we need to let the world know about. Where my considered, it was an interesting challenge because I happened and they said, you know, you can’t drive anymore. And I had been the black sheep of the family. So I hadn’t seen her in a long time. And I sat there with my siblings and I said, well, I can help her. This is what I do. But I don’t live here. And I live in a different country. And here’s what I you guys have to agree and here’s what will happen. And so I’m sharing this now because it’ll help you to understand this therapy. Let’s just pretty far gone. I, you know, she didn’t even recognize her husband in the other room. She went over and said, who’s that man in that room? Right? And so it pretty typical. Yeah. I have to treat her, and then they have to do it weekly or biweekly or a few times a week, depending on her reaction. And she’s going to get better enough to be tricky again.

00:15:02 – 00:20:00

To get away, maybe to they’ll have to, they had gone sort of with the degeneration to the point where we could put her somewhere or we could try to improve her enough to go back through that dangerous period. It’s a tough call, and it was my siblings call to not help. It was really challenging for me to go I have these tools and you’re saying no. So I feel like I’m. Very sad to think of. But and she’s gone now. She passed the beginning of the pandemic actually. My mom did, too. It was kind of a blessing they didn’t have to sit through all this phantom and stuff, right? Yeah. Most of my listeners know mom and I would go to the park or the pool or the library and we’d watch children. She watched children. I kind of just hung out. But that’s what we did. That was not an option last year. And thankfully, she fell and broke her leg, which was the beginning of the end. Because up until, yeah, so my mom always said everything works out for a reason. So I guess that was the reason for that. There you go. They didn’t have to go through that being alone. Familiar kind of alone in your head when you have Alzheimer’s or dementia. But the thing that the benefit for my clients in that was that I actually was very close and visited a lot and got some wonderful experiences because of it. But I also got to see what happens when I don’t help. And I don’t usually get to see that. Usually I’m called in to help. Right? So I don’t get to see what happens when I’m hands off. And it really reinforced for me that people really should consider neurofeedback as a therapy for any brain challenge, really, but definitely something that’s degenerative like Parkinson’s or Alzheimer’s dementia. Those kinds of things. It’s the quality of life change and the speed of decline are so strongly affected. Well, I have a question when that’s in France, right? No, I am the next you are you. Oh, okay, ’cause okay, well, that’s interesting. She’s cutting. Yes, I thought she was the one that was in France, and that’s why her Internet’s going given us a headache. But I had a, when you were telling your story, I can understand why your siblings chose not to go backwards in time with mom because going back to the challenging time. That’s a really hard time. And to have to go back into it, I’m not sure I’d choose that either. So that makes me question obviously my thought is, obviously we should do this kind of treatment earlier to maybe slow down getting to that difficult stages. Those difficult stages. Yes, absolutely. But also it depends on the family, right? So it isn’t likely to stay in that place. We could have got enough improvement that she was in a better place than that really scary time. But she did still, you know, she was still eventually lost the battle. And so it’s a lot of work. It’s a lot of heartache. And I really advise yes, more the early stages. Much more. Which is one of the reasons we’re talking today so that people learn about this and maybe they can participate before they get to the later stages like your mom and my mom. My mom at Alzheimer’s for 20 years, and until you guys reached out, I didn’t even know that this was an option. So. Right. Obviously, it’s something we need to let the world know about. Yeah, for sure, for sure. And also, I mean, they have new stuff on the amyloids and I mean, it’s pretty exciting. But even with that, there’s not some of the people are responding some aren’t and if you add neural feedback at that point, when you’d be doing these things, oh my goodness. You’d be so well off. The clarity of thought and the improvement in your brain would be astronomically changed. So a lot of the people that I work with, they plateau and stay put, right? Backing up damage is harder. But we can kind of keep you in one place for a long time with Parkinson’s with dementia all the different kinds of dementia, vascular, depending on what’s going on with your heart, but yeah, no neuro feedback, unfortunately, and that’s why it’s so great that little was written her book and I’ve written books and we’re talking to people.

00:20:01 – 00:25:03

I mean, we apply it to whatever is going on in the brain that is going on in the giving correctly that is just functional. And we teach the brain to operate more functionally. This is hard for people to understand and to really believe in. They want it to sound much more like, well, it just sounds too good to be true. That’s the problem. Years and years ago, my this must have been in the 80s, which was making me show my age again. I did biofeedback for like migraines, but it was not was this something you like at home thing where you were kind of trained and you had like believe it was like a little four by 6 size, I don’t even know what you want to call. It wasn’t a machine. It was the thing that made the noises and then it had like Velcro loops that went around your fingers. And so that’s my only experience with this kind of stuff. And one night I did that, I did the biofeedback. It’s kind of like meditation, I think. It’s like we’re going way back here. So again, scraping the rust off. Some of those brain cells. But I remember waking up the next morning in the exact same position that I fall asleep in and I felt so much more rested, which I am not a person that sleeps on my back, so that was amazing to wake up in that position and feel even better than had I slept normally. So I kind of think of neurofeedback and you can correct me if I’m a 100% wrong. It’s kind of like trading your brain to work around whatever’s going on. You want to take this one or feel a lot. Sure. I mean, yeah, it is, I mean, it is a sort of biofeedback. It’s just that we’re speaking to the neurons directly. And then what you’re doing is you’re just asking the brain to create more of certain frequencies and less of others. So depending on your challenge, you are asking for the brain to facilitate new pathways and new ways of doing things. You’re asking it, you’re asking for a new direction, basically. You’re saying, okay, you’re used to doing this. Now how about you try to do that other thing that you’re not used to doing? That makes sense. I liked your comparison to medication. Because when you learn to meditate, what do you do? You learn to focus in on something or open focus. However you’re doing it. You learn to get your breathing happening. So you change your brain and your body. You change your oxygen flow. You change how your brain’s operating what you’re thinking about what you’re focusing on. This is much more powerful in that we can look at these minute changes in the brain. But the idea is the same. It’s not that different. And we still have those small things that you use, those portable devices. And we have more sophisticated ones now. Sounds like you were working with either temperature or blood flow or oxygenation. If it was on your fingers. Yeah, I don’t think it was fancy enough for oxygenation. It had to be like blood pressure or something that could be read through like a Velcro loop on your finger. How do you do an oxygen test when you go to the hospital to see how much oxygen you have? Stick your finger in this little thing. Oh, that’s true. Fortunately I don’t have that experience too much. But I can use my Apple watch. Yes, much fancier now. And, you know, I’m old enough when we got our first Apple two E computer, which was in 1982. I was in high school. I think my Apple watch has more memory and more computing power than that computer did. It just blows my mind. But I wanted to take a quick step back because you were saying you mentioned that the new treatment drug, which I can not pronounce, I’m not going to try, has been approved. They’ve got to do another clinical study, which it’s kind of like approved with caveat. Yeah, conditions, that’s a good word. But I just read last night or this morning that hopefully now that there is a potential treatment people will get tested sooner because I’ve talked to a lot of people that are like, there’s no cure. Why should I bother knowing? And you guys probably aren’t aware that my mom had Alzheimer’s, her mom had vascular dementia and my maternal great grandmother had some sort of dementia. She died before I was born, which obviously we have detailed was like in the 60s. The late 60s, thank you.

00:25:03 – 00:30:00

And so I don’t know, I don’t know if they knew what type it was at that point. But it runs in my family and, you know, there’s times when it’s like, yeah, I’d like to know so that I can take care of things beforehand. You know, if I met a higher risk, which I just always assume I am. But now that there’s a potential therapeutic, is the right word. More people might get earlier testing and then we can do all these lifestyle changes, neurofeedback, maybe use this medication or whatever else they come up with in the next year or two. So it’s even if it even if it doesn’t work because I guess there’s a question as to whether or not it actually works, which is kind of interesting that they’d approve it anyway. I think that’s about significance. So when you do a study, you have to have a certain level of response for and they got that in one study, not in the other. And so there’s that whole depending on dosage and stuff still being figured out. But it’s definitely working well enough for this level of approval, I think. I agree. So Lulu, you went from being a client to a clinician, you want to talk about that journey a little bit real quick. Since you’ve been so quiet and here Internet connection is better from France than Linux from my state. I mean, yeah, I it is a topic Alzheimer’s and it’s not something that I’m personally familiar with. So and I know I most probably am going to be in close contact with someone. So I just love learning and hearing about both of your stories. But yeah, my story is because of my brother, he had to he was offered neurofeedback and he did great with it in terms of his sensory issues, even he was a bit violent. It’s very violent. His communication. And then I ended up doing it myself or my depressive tendencies, my lack of focus. So nerve feedback is a great tool also for I can imagine families who are dealing with someone who has dementia Alzheimer’s, you know, whatever you are feeling you’re going through. It’s also a tool that you can show to use for yourself. You know, if you’re if you’re not feeling well enough to care for someone else and that won’t help either. So it’s definitely a great tool for the family. And that’s why the night was seeing that it’s a great family solution. And so then I ended up finding it so fascinating that I wanted to work in it. And I got trained and yeah, I do have, I think it’s very important for everyone who is interested in getting training or feedback. You must have your own personal experience with it to really understand what neurofeedback is and what it can do. And really just to sorry, I’m going to bring it back to the net because that is my main question that people ask me and that I wonder myself. So for a neurodegenerative disease like that, how are symptoms? How are you? How can neurofeedback that’s coming from someone who’s supposed to know this? But I really am wondering because I know that’s why everyone else is asking. How is it able to really pause and the symptoms and how is it helping and not get worse? How’s my connection? Because this is a good question. That’s good now. Good. So there’s a couple of answers here. One is Alzheimer’s itself. What are some of the preventatives? One of the main preventatives for Alzheimer’s to at least put it off into the distant time, so the onset is later, is a have a variety of learning. So when they, when they examine people and they look at what’s been the lifestyle that led up to Alzheimer’s are not when they see after an autopsy gee, this person had tons of plaques and tangles and operated fine. And then they examine what was the difference. The difference tends to be having a variety of learning, having not just be a person who’s great and one thing and they’re filled. But is in fact sensationally interested in always learning new things and very, varied and eclectic. In active, you know, active with their brain active with their body. So when you do oral feedback, one of the things you do and is you ask the brain to shift how to operate. When you learn something new, one of the things you do is ask the brain to shift how it’s operating. So if I decide, I want to learn a new language.

00:30:02 – 00:35:01

Well, you can think about gee, I’m going to study it. But what’s happening in your brain? What’s going on? Well, new things are being wired in. New ways of operating are happening. And that’s what neural feedback does. It asks your brain to shift. So even as a preventative, for you who have it in the family, as a preventative, just doing neurofeedback in a varied way with lots of different sites and lots of different actions happening in your brain because of that. You’re going to improve your odds of being one of those people who maybe hasn’t. Nobody knows. I’ll go for that. Right? So that’s part of the reason that you would be able to sort of plateaus somebody. Because your first of all, you’re helping prevent the degeneration by keeping that brain active and learning. But also you are optimizing areas. So let’s use an example that CZ to understand. So here’s an easier way to understand it when somebody has dementia at Alzheimer’s. One of the things you’ll see them start doing. They’ll be pretty good while they chat with you. But if you ask the memory questions or, you know, where did you put your pen just now? Something recent, something close in. They’re going to have a harder time. But another thing that they’ll do is they’ll start using that can you give me that thing in a jig with the square white over there and it’s their phone. Or, you know what I mean? It’s something that can’t find the words. They can’t bring it together. And they’re using alternate ways of expressing it. Well, they’re sort of self helping. They’re going, okay, I can’t get the word I need. So I’m going to grab something else. I want to say sofa. I can’t get that word. I’m going to say couch, or I’m going to say the sit on her. Well, that’s them using their brain to find an alternative pathway to get to the end result thereafter. With neural feedback, we’re sort of tuning up the brain and helping alternative pathways that are less effective, be more affective. So that then they can come up with maybe instead of sit on her. They can say couch, right? And that wouldn’t even have been noticed. So there’s a lot of answer to your question, Lua. But that’s a large part of it, especially when it’s related to this disorder that’s all about sort of short term memory and maintaining the long-term potentiation, but not the short term stuff. And this whole issue of not being able to try something new because now you’re afraid. You’ve become afraid. You know you’re not working well. You’re pulling away, you don’t want it to be social because someone will notice you’re getting afraid to try new things because you’re having so much trouble with old things. So it doesn’t occur to you to try to break through that by learning new things. I don’t even ask you. I just stick the sensor on your head and tell your brain what to do. So those are some answers to a very actually challenging question that I could probably do an hour. Which I’ve gone down that road with the super long episodes. I do know that people with like a higher level of intelligence, which is not to say that some of us are dumb. It’s just higher than average intelligence. Sometimes can mask the early symptoms easier because they have more coping techniques in their brain more more powerfully. Yeah, it was probably the right term. And then so somebody that’s really intelligent or like genius level IQ type person to somebody that’s got a lot of education. They might go along really fine into the first second maybe even entering the third stage and all of a sudden they run out of these pathways, these coping techniques, and all of a sudden it looks like they’ve gone from zero to 5 out of a scale from one to ten overnight, and it’s not really overnight. It’s or at least they don’t think so. They just think that they’ve run out of these pathways. So it makes sense that we need to grow those pathways in the ways. Yes, strengthen and wired them differently. So basically, it’s like doing construction in the brain and getting around the plaques and tangles. And making new connections and new ways to do things. I’d like to say something to what you just said though. It’s a scary part of Alzheimer’s is that the higher IQ, higher functioning person can hide it a little better.

00:35:02 – 00:40:05

And so there you have maybe a doctor, for example, who is getting Alzheimer’s and part of unfortunately part of the whole umbrella of dementia is that you don’t really recognize your own deficit at the degree that you have it. And you don’t want to admit to it. And the more you are high functioning, the more you don’t want to admit to it. And so now you have someone who doesn’t really remember what exactly they should be giving you as a prescription and see what I’m saying. So we need to destigmatize all of this. And really make it possible for people to say, hey, you know, I’m having some memory issues. I think I’m going to do some memory games. I’m going to look into some memory vitamins because all these things exist, right? Learn a new thing, get my brain going, maybe do some neurofeedback, oxygenate more, get a little more active. There’s all these things help. And they really help. So if we were afraid to say it out loud, we’d get the support of our family when we needed to change all that. Definitely, and you said your mom is gone. And I said, my mom had Alzheimer’s for 20 years. She passed away. Shortly after her 77th birthday, if we had been able to push out the onset of her disease ten years, you know, maybe she would have lived to 87. I was just telling my husband today it bothers me a lot. Today would have been my dad’s 80th birthday. He didn’t make it to 78, either. So it’s like, I don’t think he made it 77. Because I can’t do math, but that’s okay. That’s not a new problem. But you should try to learn math because that’s a challenge for you and it would be wiring your brain differently. I learned how to turn last year, I was a professional photographer. And I have learned how to turn a podcast into a business which is a lot harder than I thought. And so I think I’ve done okay, just talk about learning math makes me want to scream. Okay, it does me too, but you know what? That math is mostly done in the parietal lobes in the back of the brain and a lot of dimension Alzheimer’s is related to the occipital lobe, which is in the back of the brain. So the fact that you hate math might be an indicator that you should play with the math. You can make it, right? It could be a math game. I could try. I’ve learned. I can do cards. I’ve never played bridge, but I could probably learn. I think my husband might know how to play that. I don’t have to ask. I know his grandmother’s played cribbage, so that I’ve learned new games. I’ve learned that I exercise. I eat right. I take a specific supplement called relevant. It’s got 17 things nutrients for your brain. What else do I do? Trying to learn new stuff. It’s usually on the creative side because that’s me, but still learn a new stuff all the time. How else do I do? Okay, good sleep. Try to stay positive. That was the challenge in the last year. Yeah. We’re waiting desperately for the tomatoes to greet or to ripen on the plant. I love how grown tomatoes. The zucchinis, we’ve decided we are not ever planting two zucchini plants again. It’s like zucchini three times a day. But my husband just recently had a health scary had blood clots in his lungs. And in dealing with that, they’re like, dude, we think you’re prediabetic, which was my dad was diabetic, so I’m like, yeah, that’s not a surprise to me, honey. So in reading what he shouldn’t shouldn’t eat, to improve on, they don’t know if he is, they gotta do some more tests. But assuming that he is, then, you know, we’re like, we’ve been going back to the healthy, healthier lifestyle we had when we lost a lot of weight. Getting back there. So it’s all process. It’s like. I don’t know, I should have the healthiest breed on the planet. Not if you’re avoiding your math. Well, I can do. I’m teasing it. I want you to. Well, I always tease my husband. He says, well, you’re no good at math. I’m like, put a dollar sign in front of it, and I’m like that. ’cause I could figure out, especially if it’s X plus Y dollar sign is what you owe me. I come up with that number. So there are priorities with my math skills. That’s usually how I teach math, the autism is with money. Because money is math. But I am teasing you. I think though that we’re always walking that fine line between, I don’t want to create stress in my life by trying to do the things that are so horrible for me and that I don’t enjoy.

00:40:07 – 00:45:04

I also, though, don’t want to avoid it to the point where everybody else takes it over for me. Does the scoring so that I don’t have to do the math? Before you know it, they’re all saying well, you don’t like mass, so we’ll do your math. And that part of the brain now atrophy is a little bit. So it doesn’t do its job. So it’s kind of this balance between. Yes, I don’t like doing that. I don’t want to be that person. But I also don’t want to be quibbled. And keep so, you know, keep buying things, and you’ll be fine. Okay, well, I’ve got like a wishlist on a website for my hobby. And I will add it up in my head. So that I can see how much I’m going to spend before I hit by. There you go. I could do that. Yeah, I have the same problem I hate maths, so I started really paying attention to what I was spending in the grocery store. Because that was immensely really challenging, and I got really good at it. And I thought, well, I must have fixed something. Hopefully you started spending less. Probably. It probably didn’t do that as well. I heard this is a side note. It’s funny, so I’m going to mention it. You know, we’ve got a significant part of our country that doesn’t want to teach critical race theory on the auspices that it makes people uncomfortable. And I was listening to a podcast and the two gals on the podcast. One of them said, well, chemistry made me feel horrible, so we shouldn’t teach chemistry. And the other girl? I think the other gal mentioned math, but I’m in my office listening to that going, yeah, they should stop teaching math because man that’s just really wrecked my life. So yeah, it’s not exactly a winning argument there, but I feel like and it’s really awful that we think that we should be happy and comfortable all the time. That’s one of our ills, you know? It leads to all kinds of antidepressant medication. No, you’re supposed to get sad. You’re supposed to get stressed, you’re supposed to struggle and you’re supposed to learn how to get through it. Like we did last night? No, really? Last year was like, let’s do all of the coping techniques all at one time. Right? Well, I thought we moved, but she knows one of the top 5 stressors. My mom was getting she was already very combative and she was becoming more of a challenge. And then she fell, she ended up in the hospital and it was like, wait a minute. This virus thing seems to be not just in China. Do I want to be in the hospital anywhere near anybody? Do I want her? And it’s like, so there was all that. So that was our march 8th. And so I saw the 8th 1214 and 16th march 16th is when the governor of California closed all the counties in the San Francisco Bay Area of which I am one. And so I didn’t get to see my mom the last two weeks of her life, and that was very stressful because I wasn’t aware that she was actually in the active stages of dying because I didn’t see it. I did see her before she died the day before, so that was okay. But I was very concerned that she would forget that I was her, quote, best friend. And that when I saw her again, she would not trust me and all of the combative problems that she was presenting us would be ten times worse. So there was that, then she dies, and it was like, I had to deal with my sister. My sister and I don’t see anything the same. So there was that. So that was March 31st, and then now we’re on shutdown and then everything gets canceled and then, you know, it’s like, well, no what happened last year in November, my oldest dog died, and then this past April my paternal grandmother passed away at 103, which was less sad, but it’s just continually one end of an era after another. And then, right after my grandmother, my husband ends up in the hospital. It’s like, okay, people. Done. I’m ready for the feel good for a while part of the way. But I learned a lot of coping techniques so that was positive. And we had a quiet, you know, quiet time at home for you to go through all that in probably was less pull on you in many ways, except for the moving part. But yeah, we didn’t know. I liked the pandemic as much as I hate that people suffered and all that. I felt like in our world, it was a chance to go, all right, stop. Let’s hang out. Right. Well I’ve worked at home for 16 years, so it might not very much in my life changed. I’ve used zooms since September of 2018, everything went on Zoom, so that was good and bad.

00:45:05 – 00:50:04

Mostly good, but, you know, there are days when it’s like, oh my God, another Zoom call. You know, and I’m hoping that as a society that we’ve learned, you know, working from home is can be productive, and there’s a lot of ancillary benefits like, you know, you can pick up the kids from school and then come back and go back to work. You can take the dog for a walk and maybe do a conference call, you know, with your AirPods. We’re not polluting the earth with driving. We’re less stressed. I mean, I’m just hoping, hoping that we’ve learned a lot and now unfortunately on the flip side of the coin and I was a huge advocate against all of the older adults like my mom being locked away from family. Like my mom would not have coped with a window visit because her visual processing was so bad. She would have no flipping clue who she was looking at. She didn’t know who I was as it was. And if she didn’t recognize this person as her friend, then that would be a problem, but she also recognized me. Wouldn’t it? Yeah, it would be creepy. You don’t recognize the person and they’re standing there staring at you. Yeah. You know, and I kept saying, you know, we’re protecting them from this virus, but we’re killing them from isolation and I mean, that was really easy for me to say, ’cause I wasn’t having to deal with my mom, but, you know, I could see the damage that it was causing the people living with the dementias of whatever form they’ve got. And the caregivers, their family that were taking care of and just it was, it was worse than a train wreck. But, you know, hopefully we’ve learned, and now we can see that, you know, we’ve got this new drug. We’re talking about your neurofeedback. So I’m hopeful that we just keep moving forward and learning new things, which is good for our brains. Right. And don’t wait. Don’t wait for, you know, you don’t wait for the drug in the diagnosis. You go, you know, it’s in my family. How do I what are the things I do to offset the possibilities? Why wait? You know, you’re feeling a little depressed. That’s part of it. Maybe you’re getting it a little bit. Who cares? We don’t need to know. We don’t need to know before we make the changes. And the changes may make the changes. So that you don’t need to know. Right? So it’s really important not to sit back and wait and hide it. I think the stigma is the biggest part, really. Even with this new medication, you would want something that’s helping keep you optimized, not just attack those plaques and tangles. Because you’re also getting old. Stuff still happening, right? Stuff still is happening. That’s what I tell people by paternal grandmother lived to be a 103. That makes me have 49 more years to go. There you go. There’s a whole life. And I plan on making sure that I can use I can enjoy all of those 49 years, or at least 48 and a half. I want to find a lot of similarity between I’m trying to throw the ball back to luluwa. And I think something to know is that I a lot of the things that I understand about Alzheimer’s, I got that knowledge from working with autism. There’s a lot of sameness here at it can be a whole brain disorder. It affects it very radically it also can the brain. It presents very differently in a lot of people until the later stages. And depending on the type you have. But also just in how they respond. You’ve probably seen it how to talk to someone with Alzheimer’s, or how to talk to someone with dementia. Well, it’s also how to talk to someone with autism. You don’t challenge the world they live in. All that stuff. And so when I was working with autism a lot, and then I got my first Alzheimer’s patient. I went, well, this is so similar. And many of the things that had worked well for me with autism worked well in Alzheimer’s. So I think that you should take a minute to talk about your brother and about you’ve done neurofeedback on him as well. And what you see is what’s changed in his ability to remember and cope. Especially the anger thing because that is a very big part of Alzheimer’s, as you move along, they get very contained kentan and Chris they get very sort of paranoid and they hit you and stuff too. So much like your brother was. Yeah, so it was really with the neurofeedback. It was a mix of helping his brain like we were explaining. Have new ways of coping with what was going on around whom we also had to learn how to be around him. So like you were saying, we had to understand if he was going through this.

00:50:04 – 00:55:06

We shouldn’t ask him to do certain things if he’s, you know, in the middle of a tantrum and just help him through it and support it. But really, the nerve feedback was here to calm him in times where maybe his sensory maybe things were happening around him or he was trying to get things out of us and we weren’t understanding of it. And just calming him overall, that was the real issue that my parents were first dealing with. Once that was kind of out of the way we were able to kind of pinpoint and go in with his communication going with how is he understanding socially the people around him? How has he understanding? Is life? What kind of independence he wants to have? What kind of freedom he’s looking for? And I guess that’s where you would see similarities to where if we are just trying to control this person because we’re so scared of what they may do next. We are removing any kind of freedom and independence. They may have, and I think as a family, just knowing that there was a tool that we had to help us all through it because it’s not a lonely he’s not just going through it alone in the same way with Alzheimer’s and dementia. It’s a whole family thing. So, with us, it was, and that’s why I loved her feedback so much. It’s a tool. It’s here for you. It’s here to help you speed up whatever you’re trying to work with. So it’s not you’re not alone doing this. You’re here helping their brain and telling them, okay, how bad we try to work on this area of your brain while at the same time we’re giving you more chances to try this innocent this or like your example before to ask for that object, maybe, okay, we’re seeing he wants to remote, maybe with neurofeedback who help with figuring out whether it’s a focus and clarity issue or language issue or whatever it is. The two things working together is really just a beautiful thing to have and knowing that we’re we are well supported. I mean, it is a it is a commitment. You know, you don’t just do a session. And then just never do it again. You can. And you should feel different after a session, but it is more of a long-term thing. And really what I love the most about it is that you are changing the brain. You really are. So and the net says all the time. You don’t know what would have happened if you hadn’t done a session. You really don’t know. So and that’s where it gets tricky where it’s like, did it actually help? Did not actually help because you did a session. So now it’s a new landscape. It’s a new setting that you’re dealing with. And that’s why I can imagine using it as a preventative tool can be really powerful. And it’s really good, actually. That was nice, very nice. So this is my star. Well, I’ve noticed lots of similarities between autism and Alzheimer’s. Especially later stage Alzheimer’s and those that are I don’t I don’t have the right terminology for people that I mean I’ve like my nephew is on the autism spectrum, but he is a 100% different than the client that I had who is autistic. He was verbal, but it didn’t take a lot for him to get overstimulated. And I had to work with him differently than I had to work with his twin sister. And it was a great learning experience because obviously he wasn’t the only person with autism in my world. So I appreciated that learning experience and my mom was already in the later stages of Alzheimer’s, so there was definitely a connection. But was your brother or is he still non verbal? No, he’s rubble now. He’s the biggest blabber I know, actually. He’s making up for lost time. Yes. That’s was not verbal at first. That’s interesting. This is really fascinating. I’m so glad you guys reached out to me because, you know, like I said, as we started, I had no idea. I didn’t know very much about neurofeedback and I had no idea that it could help people at any stage of Alzheimer’s, but it’s definitely something we should keep in our tool chest for like people like me should consider it, even though I’m doing everything else, except for the math.

00:55:08 – 01:00:06

Yeah, and there’s so many providers now. It shouldn’t be that difficult to find. Might have to check in with my healthcare provider. I try to avoid those people trying to keep myself healthy. You know, there’s always just a good old Google search to see who’s around and what they’re doing. I want to just I know we’re getting close to the end and I always like to think gee, we’ve told all these people about neurofeedback, but if they don’t have it, what can they do themselves right now? What kind of gold can we give them so that when they stop listening, they go, wow, I got something, and I can use it right now. That’s excellent. So what I’d like to talk about just for a second is stress. And show you how that affects your memory in a very clear way. So let’s say you’re somebody who is wondering about their memory like I’m losing things. I can’t remember where I put anything. And I don’t know how to think backwards and anymore, somebody says to me, okay, where were you when you walked in the door, which way did you go? Because that’s how we always figure out where things are. And I don’t know, I don’t know. Okay. If your feeling worried, never mind where they have Alzheimer’s or not. Never mind to be of autism. If you’re feeling worried and preoccupied, and there are things happening in the environment that you walk into that will interrupt your rote and natural habitual behavior. You will put things places without knowing where you put them. You will walk places without knowing where you walked. It’s like getting out of your car while you’re on the phone and not paying attention to where you parked and then you can’t find it later. It’s not because your memories going, though it may be. It’s because you’re doing preoccupation. You’re doing stress. You’re doing inner attention, not outer attention. And you can’t remember something you never learned in the first place. So if you never saw yourself put it somewhere, you can’t remember where that is. So this becomes really important once you have a brain challenge. Because that can optimize a lot and take a lot of the difficulty down and bring it back to an operating level that’s better. Like by years simply by going, okay, I’m going to pay attention. And you don’t need to have feedback for that tip. That reminds me of yeah, really. It reminds me of a story when I was in college. So I was probably 18, 19 at the oldest. My college was not far from the local shopping mall, those things we used to have in the 80s that were cool that are dying at this point. And I went to the mall for something parked my car on say the east side, went back to class. And I think I went and picked it up. I basically went to the mall twice in one afternoon and the second time I parked on the west side, and I went in and did whatever I needed to do and then exited on the east. And was literally seconds away from calling the cops because I thought somebody stole my car because I couldn’t find it anywhere. When thankfully that brain cell popped to life and went, wait a minute, that was earlier today. Your car is way over there. But I remember that. We’re talking like 35 years ago, or maybe a little more. And I remember how horrifyingly scary that was. I mean, mostly because I thought my car had been stolen and why anybody would want a 1982 Ford escort I didn’t know because those weren’t great cars. But I can imagine what it’s like for somebody in the early stages before they even know they’re every memory issues to have those kind of panic moments all the time. And I don’t really want to tell people that you went to the mall twice and you lost your car because that’s just all the embarrassing, but also like when you park your car, the vision is different so when you’re walking into the store, you’re going to say east and when you’re coming out, the whole the whole landscape looks different. And so you know, like you said, pay attention, but take a minute and say, okay, I’m struggling lately. So I’m going to fix that by putting more very specific information in. Okay, I’m walking towards a store, that landmarks there. You know, I’m walking facing the sign that says pharmacy. Really take a minute. Don’t be on your phone or busy in your head because you won’t know. You won’t know where you were. And you’ll get scared and then that’ll become a feedback loop that makes it worse. And if you’re paying attention as you’re entering the store too, maybe you’ll intentionally paying attention to the external input.

01:00:07 – 01:04:16

Maybe you’ll notice that you’re walking in front of this car that’s patiently waiting for you. I hate going by the grocery store. People always walk diagonally, and I don’t think they realize it takes three times as long. And it’s just one of those things where I have a hybrid and it’s like, okay, the electric engine is running right now. I could just run right over you and you’d never even know it was coming because you’re not paying attention and it’s cars not making any noise. It’s just one of my little frustrations that I have to just breathe. It’s okay, ten or 15 seconds isn’t gonna kill me. It’s just right. Yeah, I try to avoid the grocery store at certain times a day so that I don’t have that issue. But, you know, I feel like there’s so much input these days that we just we have like no clue. It’s like people just stop and smell the roses, you know? Look around. Might be some pretty flowers outside the grocery store or some kid doing something funny. You never know what you’re missing because you’re living inside your head or on your phone or both. Don’t do that. Pay attention to the world around you. It’s not that bad. That’s a nice point to make at the end. Thank you. So can we get your book from client to clinician? Is that available on Amazon? Yes, it is on Amazon. It’s like, isn’t everything? I will make sure. I will make sure that it is linked in the show notes so people can learn more about your story and how neurofeedback was such a positive experience for your family and your brother that you would then became a clinician of neuro. Neurofeedback. There we go. And I just felt it can help other families too. I think this is I’m so glad we had this conversation because like I said, I’ve done almost 200 episodes and I have never talked to anybody about this particular subject, so definitely was in the necessity. So I really appreciate that you guys reached out to me and that we could make this work today with Lulu and France and Lynette is on the other end of California, I believe. Thank you for having us. It was really a pleasure. Thank you for sharing your audience. I appreciate it. You’re welcome. As I mentioned several times in nearly four years of podcasting, I had never heard of neurofeedback as a possible treatment slash prevention for Alzheimer’s or dementia. It’s definitely worth something to check into. Coming up next week, besides Thanksgiving, we have another memory health supplement that you want to hear about. This one went through clinical trials, so I find that quite helpful and interesting, it’s my belief that many of us are going to have to try different supplements, different treatments, we’re all different. So we’re all going to need to approach brain health and aging well in different ways, right? So I try to bring you as much useful information as I possibly can. Coming up next is that blurb you’ve been hearing about on the new social media platform retreat that is coming out next year. Looking for relevant, trustworthy health, wellness and lifestyle information, I’m joining the launch of retreat. Retreat is a first of its kind, free social media app that focuses solely on health wellness and lifestyle content. The platform hosts live, interactive audio chats, led only by vetted health experts while allowing experts and users to post and share videos, pictures, and thought pieces. Users can also meet others that share similar health and or lifestyle challenges. Informing communities of like minded individuals, retreat wants to empower people to share their experiences with others to guide them on a journey to better health and living. I’m joining because I want a less crowded space to build a community of listeners, caregivers, and other experts. Watch my current social media feeds for more information about their official launch date.